Charities and Trusts

 charity, charity for disabilities , charity for for rare diseases , Disabilities Foundation, disease, disorders and disabilities foundation , HLH, rare disease, ultra rare disease , urddad-foundation


86 Palmerston Road, Belfast, County Antrim, BT4 1QD  (Show me directions)

028 954...Landline    Landline   

  Monday to Friday: 09:00 to 17:00 , Saturday to Sunday: Closed



urddadfoundation   @terence_hoey   @terence_hoey   urddadfoundation  

  Mastercard, Visa, Paypal


Living with an ultra-rare disease is a huge commitment it not only affects the patients but it affects every single person in the family circle no one knows what it is like to have a diagnosis of an Ultra-Rare Disease with in a family unit no one will know until they walk in the shoes of a family who has had a diagnosis of an ultra-rare disease. The Ultra Rare Disease Disorders and Disabilities Foundation wants to see patient's drugs ring-fenced for the life of the patient we also want to see round the clock support for carers and families who are looking after a patient with an Ultra Rare Disease.

We hope you will support our cause we stand up for patients who cannot stand up for themselves we know if it was to happen to a child in our family we would want the best treatment and best care for our child join with us by registering your support and become a member of Ultra Rare Disease Uk you can also show your support by donating to our cause on our site thank you to all our members, help us to stand up for children without a voice


Photo 16

Is this your business?

  • Add rich content via our editing tools
  • Remove ads from your listing
  • Appear more prominently in search results

Report a problem with this listing